From Franklin County Board of Developmental Disabilities “NewsBits”
Nisonger Photo Contest–Deadline August 1
The Nisonger Center at The Ohio State University has extended its deadline for the annual ‘In Sights’ Photo Contest. Enter for a chance to win up to $500. This year’s theme is Sports and Play Activities. For additional details, call 614-685-3196 or click below: http://nisonger.osu.edu/photocontest
Self Advocates Wanted to Participate in Nisonger LEND Program
Nisonger Center is recruiting for two self-advocates to participate in the LEND (Leadership Education in Neurodevelopmental Disabilities) as trainees. Trainees learn about disability, advocacy and will participate in a leadership project. Trainees are paid for 10 hours of work per week. Letters of interest and resumes can be sent to firstname.lastname@example.org or call 614-688-8472 for more information.
‘Crip Camp’ the Oscars and the tenancy of one legendary activist
Disability rights advocate Judy Heumann in Washington, where she has lived since 1993. (Shuran Huang/For The Washington Post)
By David A. Taylor May 25, 2021 at 9:00 a.m. EDT
From May 30, 2021 “The Washington Post Magazine”
Judy Heumann’s pandemic year started off extremely well. In late January 2020, she attended a Sundance screening of “Crip Camp,” a documentary about disabled young people — including her — who, after meeting at a Catskills summer camp run by hippies in the 1970s, went on to shape the disability rights movement and change federal law. It was a surprise hit and became an Oscar nominee for best documentary.
The following month, she published a memoir called “Being Heumann.” (She hadn’t known when the film would be released, so the timing was a coincidence.) Publishers Weekly hailed the book as “thoughtful and illuminating.”
Then, just days before the world shut down, Heumann — who has made her home in D.C. since 1993 — joined Trevor Noah on “The Daily Show.” At one point in the interview, Noah called her a “badass” and asked her about the time, in 1972, when she “decided to shut New York down” with a disability rights protest.
In the midst of their friendly exchange, however, Noah made a reference to “able-bodied” people — and Heumann doesn’t like that term. “I call you ‘non-disabled,’ ” she said with a smile, “because the likelihood of you acquiring a disability, temporarily or permanently, is statistically very high.” A slightly dazed look crossed Noah’s face. “Did you just threaten me?” he asked, deadpan.
If “Crip Camp” and Trevor Noah introduced Heumann to a wider audience, then it’s arguably about time. Susan Mizner, director of the American Civil Liberties Union’s Disability Rights Program, calls Heumann “the mother of the disability rights movement in so many ways” — an activist “who doesn’t take crap, never has.”
Unable to walk since before age 2 because of polio, Heumann, now 73, grew up in Brooklyn, where she felt championed by her parents. Werner and Ilse Heumann were German Jewish immigrants who lost family in the Holocaust. In the early 1950s they didn’t know about access for disabled kids, but they knew their daughter was going to school. When they took her for her first day, however, the school principal physically blocked them at the entrance, saying Judy was a fire hazard.
America then had no room for disability, and the Americans With Disabilities Act was still four decades away. Judy’s father worked long hours at a butcher shop, so the “day-to-day work of fighting fell on my mother,” Heumann writes in her book. “Telling Ilse Heumann that something wasn’t possible was a big mistake.” Dubbed Mighty Mite by her husband, Judy’s mother simply didn’t hear the word “no.”
As an adult, Heumann continued the fight her mother had started — for instance, suing the New York Board of Education when it denied her application to be a teacher. It was a lawsuit, she told me, that even the ACLU wouldn’t take back then. Yet when the case came before Constance Baker Motley, a civil rights pioneer turned District Court judge, she agreed to hear it. New York settled and gave Heumann a job.
Heumann laughs in discussing stories that back up her badass rep: shutting down traffic in Manhattan (to protest Richard Nixon’s veto of the 1972 Rehabilitation Act), getting hauled off an airplane by security (for insisting she had a right to her seat) and launching a sit-in at a federal building in San Francisco, with meals provided by the Black Panthers, to try to get a crucial section of the revived Rehabilitation Act enforced and end discrimination against people with disabilities.
From 2010 to 2017, Heumann served as special adviser on international disability rights at the State Department, working to make disability part of the department’s agenda and to pass an international treaty similar to the Americans With Disabilities Act. More than 180 countries have ratified the 2006 convention, but not the United States because of political division. How to get it ratified? You get around the nos, like her mother did, says Heumann. “You figure it out.”
New challenges continue to arise: The pandemic, Heumann, notes, has amplified the issues faced by many in the disabled community. For people who need help getting dressed, bathing, cooking or going to the bathroom, the coronavirus and the shutdown created “definitely a more difficult situation” by making it tougher to find helpers who could come into the home. Some disabled friends of Heumann and her husband, Jorge Pineda — who also uses a wheelchair because of a spinal cord injury — had to leave D.C. to live with family elsewhere.
At a Q&A after a Sundance screening of “Crip Camp,” someone asked: “Why didn’t we know this story?” In our conversation, that question brought Heumann back to her exchange with Trevor Noah, and a truth it revealed. She was taken up short when he pronounced himself “threatened,” but then saw an honesty in that. That’s because non-disabled people do feel threatened, she told me. “It’s one of the big reasons why really getting meaningful, engaged discussion” about disability is difficult. Most people avoid what they feel threatens them — what they don’t know.
At the Academy Awards, Heumann — wearing a custom Markarian silk suit — joined “Crip Camp” co-directors Jim LeBrecht and Nicole Newnham on the red carpet. Although they would, in the end, leave the Oscars without a statue, Heumann says the film “still won because it’s gotten where it is”: a top feature streaming on Netflix in 29 languages globally with subtitles for the deaf and hard-of-hearing, and audio description available in 15 languages.
And if seeing Heumann’s story on-screen brings viewers closer to understanding disability, then it wouldn’t be the first time she has changed minds: During a conversation this spring on her podcast, “The Heumann Perspective,” LeBrecht — who was a few years younger than Heumann when they met at Camp Jened — credited her with inspiring his activism. “You’re the reason I got involved with disability rights,” he said. “And that never left me, and it’s the reason that I didn’t want this story to be lost to history.”
I tried surfing once, and I was awful at it. My wife and I went to Hawaii a few years ago for our 25th wedding anniversary and no trip to Hawaii would be complete without trying to learn to surf. We spent an hour in Waikiki Bay with an instructor who was one of the more patient people I’ve ever met, and failed miserably at surfing. At the very end, we were both able to get on the board for a few moments — long enough to get some snapshots which will be misleading for all eternity. A picture, in this case, does not tell a thousand words.
I do, however, love the beach. I just got back from one of my favorite places in the world – Nokomis Beach in Florida. Jill and I have been going down there for over 30 years and, added together, I have spent over one year of my life in Florida, hanging out at the beach. Beaches are great — free parking, free fun. Put on some suntan lotion, grab a good book and something cool to drink, and you have a truly enjoyable experience.
For people in wheelchairs, however, the beach can be impossible. It is pretty hard to draw up a fun location to go to that is less accessible by it’s very nature than a beach. People in wheelchairs can go out on the pier, or the jetty, if they are set up correctly. They can go in a boat, provided the boat or marina has a lift to help them aboard. But it is incredibly difficult to actually go to the beach itself or (pipe dream) surfing, if you are a wheelchair user.
There is a wonderful organization called AmpSurf that is trying to change all of that. In partnershp with students from University of California at Berkeley they are creating a prototype of a power wheelchair that will handle beach terrain. This is actually not new…. There have been created before that could help wheelchair users go on to the beach. What makes this effort unique is that this chair is being designed to help users with disabilities to surf.
The chair has a side rack to carry the surf board. The user drives the wheelchair out into the shallow water and, once they have taken out the board and dismounted the chair, pushes a button on their phone to send the chair back to the beach. When the surfer is ready to come out, the chair will return to the water to help the user exit the ocean.
This type of technology sounds incredible and it will no doubt have a profound impact on some people. It does, however, highlight how tough the field of assistive technology can be. One of the questions to be asked when a new product comes along is: Who is it for? In this case it is apparently for (a) wheelchair users who (b) live near the ocean and (c) want to surf and (d) have the money to spend on it. I fear that would be an pretty small piece of pie in the end.
Surfing is a very niche sport and activity. But millions of people love going to the beach. Over half of the states in the USA border an ocean or one of the great lakes. Many warm weather states, like Florida, cater to an elderly population. If this product can be marketed to beach lovers (with the added bonus to surfers), it might have a chance. I wish them well – because everyone deserves a day at the beach!
Last week Ohio Governor Mike DeWine, First Lady Fran DeWine, Ohio State University President Kristina Johnson, Opportunities for Ohioans with Disabilities Director Kevin Miller, and many others visited Assistive Technology of Ohio. AT Ohio Executive Director Dr. Bill Darling provided an update on the latest technology to assist Ohioans with disabilities to become employed and/or be more independent and interactive in their homes and communities.
Mr. Brad Whitmoyer – a small businessperson with a disability who is nonverbal – showed us how he uses current technology to communicate and run his own business. Mr. Whitmoyer uses the Accent 1400 AAC device from Prentke Romich. It is an interactive computer where he selects icons that correspond to words that allow him to quickly build complete sentences. He uses a combination of eye-gaze technology and a switch to select the appropriate icon.
This meeting brings several important issues to mind that I wish to highlight.
First, as an Ohioan with a disability, it is good to be represented by elected and appointed folks who have spent many years directly working with people with disabilities, advocates, and many others, supporting our full participation in employment and our communities. FYI, longtime advocates like me remember, as a U.S. Senator, Mike DeWine helped author the original 1999 Workforce Investment Act that ensured that all employment programs work with the Vocational Rehabilitation program for people with disabilities leading to more employment opportunities and additional support for independent living programs.
Next, with the utmost reverence for the over 580,000 Americans who have died from COVID – 19 and many, many more with long-term illness, I submit that we must not forget or relinquish all the societal and technological advances that have come to the forefront and been widely accepted.
For most of my life, working from home was forbidden (no job if you can’t be in the office) or required special permission and many, many human resources forms to be sure it was allowed. Now, suddenly, not only is working from home necessary to keep us all healthy; it is also a “great new idea” to increase productivity.
Of course, this is where technology comes in. A myriad of creative and assistive technology has given all of us new ways to work, communicate, learn, and interact on a daily basis. Because of this – and a once in a century pandemic – society worked out what people with disabilities have done all our lives, figured out more than one way to achieve something in our work, our community, and our lives.
Governor DeWine’s visit reminded me that we have elected & appointed officials who know, support, and are constantly learning new ways for us to achieve independence and employment in our communities to the full extent of our abilities – And we need more of them.
Finally, since it seems we have now “learned” that with technology and ingenuity there are many ways to work, learn, communicate, and interact with each other; we cannot and will not return to “the way it was before”.
If you want a job, to attend a meeting, communicate with family & friends, be independent to the full extent of your abilities, and help in learning and growing new abilities, don’t allow anyone to say you/we can’t do it.
Suggest a way that works for you. Ask for help or an accommodation to figure out a way to do it. Talk about your abilities and all the things you can do.
Times and technology will constantly change. The pandemic simply accelerated some of that change.
We were honored to host Governor Mike DeWine, First Lady Fran DeWine and the president of The Ohio State University, Dr. Kristina Johnson, to our offices at Assistive Technology of Ohio! We were also blessed to be joined by Kevin Miller, Director of Opportunities for Ohioans with Disabilities.
Assistive Technology of Ohio, based in the College of Engineering at The Ohio State University, runs a statewide disability technology lending libary, focusing on the types of technologies that help people with disabilities succeed in employment, compete in the workplace, and live more independent and interconnected lives.
We were able to spend some time with our honored guests on Wednesday, April 28, to show them the types of technologies available to be checked out and tried out by any Ohioan with a disability. The tour included a presentation by Brad Whitmoyer, a small business owner who is non-verbal, and who utilizes a power wheelchair. Brad demonstrated how he uses an Accent 1400 augmentatitve communication device made by Prentke Romich, a Wooster-based company that is a world leader in the area of AAC devices.
“Assistive Technology of Ohio is a hidden jewel at Ohio State,” DeWine said. “What they do can transform people’s lives.”
Other technologies which were shown to the governor included portable CCTV devices for people with visual impairments, the Clear Reader+ device, for blind users, which quickly transforms printed text to spoken words. The tour showcased assistive technologies made in Ohio, including HomeSense, made in Akron, which helps prevent kitchen fires by turning off unattended cooking food, as well as the Obi, made by Dayton-based Desin, Inc., which is a robot that puts people with disabilities back in charge of feeding themselves.
Governor Mike DeWine, First Lady Fran DeWine and OSU President Kristina Johnson watch Brad Whitmoyer communicate via a Accent 1400 device from Prentke Romich.
US Department of Labor opens dialogue to ensure equity in employment for people with disabilities from historically underserved communities
Initiative will inform future policy, programs, funding opportunities
WASHINGTON, DC – The U.S. Department of Labor announced, beginning April 12, it will open a two-week national online dialogue to gather ideas for ensuring equity in employment policies and programs for people with disabilities from historically underserved communities. Those seeking to participate should register at RacialEquity.ideascale.com.
The department will use input received between April 12 and April 26 to help identify strategies for dismantling systemic barriers to employment and participation in workforce services that people with disabilities from diverse backgrounds, communities and identities face. This group includes communities of color, religious minorities, LGBTQ+ persons, rural communities and those otherwise affected by persistent poverty or inequality.
“This national dialogue gives us a unique opportunity to listen to those with lived experience, and opens a valuable line of communication,” said Deputy Assistant Secretary for Disability Employment Policy Jennifer Sheehy. “Outreach like this strengthens our understanding and better equips us to ensure equity in our policy work and grant programs and respond to the needs of all Americans with disabilities.”
“The Office of Federal Contract Compliance Programs plays a vital role in rooting out entrenched employment inequities and ensures that federal contractors – which employ about 25 percent of the U.S. workforce – fulfill their contractual promise and deliver equal opportunity and affirmative action in their workplaces,” said Office of Federal Contract Compliance Programs Director Jenny R. Yang. “Hearing what workers with disabilities from diverse backgrounds and identities face will guide our efforts to remove their barriers to opportunity and ensure their access to good jobs.”
“We know that the strongest policies don’t overlook marginalized communities and are designed to work for everyone,” said Women’s Bureau Director Wendy Chun-Hoon. “Engaging stakeholders as we seek to make sure our actions and policies support workers across many identities and experiences, including gender, race, sexuality, ability, religion, geography and wealth, is a core priority that ensures better employment outcomes for all.”
Governor Mike DeWine and Lt. Governor Jon Husted joined states all over the country in proclaiming April 14, 2021 to be Assistive Technology Awareness Day! We thank the Governor for this recognition and for his commitment to assistive technology and remote supports for people with disabilities.
In 2018, Governor John Kasich declared Ohio to be a Technology First state. Since that time, Ohio has been a national leader in the utilization of remote supports in the care of Ohioans with developmental disabilities. As referenced in the Governor’s proclamation, Ohio has seen a 53% increase in authorizations for remote support since 2018, with 84 of the 88 counties participating.
OOD, Ohio’s state-federal vocational rehabilitation program, has also been a champion of the role that assistive technology can play in the lives of Ohioans with disabilities who are seeking employent. AT Ohio has also increased educational programming to Ohio’s aging population, an increasing group of consumers of assistive technology.
Videos messages were also issued by Kevin Miller, Director of Opportunities for Ohioans with Disabilities and by Jeff Davis, Director of the Ohio Department of Developmental Disabilities.
We thank Director Miller and Director Davis for helping bring awareness to this important aspect of life for people with disabilities.
Milestones Autism Resources, located in Warrensville Heights, is proud to now provide a Spanish Helpdesk line, as a part of our work with the Ohio Family Network (OFN) through the Ohio Department of Developmental Disabilities (DODD). We hope that you might share this information with your network.
The Spanish Helpdesk will serve as a direct line to a Spanish-speaking staff member for help finding individualized local resources. Anyone can use the Spanish Helpdesk to find the best services in their community for their family, friend, or self.
The goal of the Ohio Family Network is to connect people with any intellectual and developmental disability and their families to local information and resources within their communities. Through the OFN program, Milestones is excited to be able to expand our Diversity Initiative with the addition of this new Spanish Helpdesk line, as well as the recent translation of our website and downloadable autism tool kits.
To translate milestones.org into Spanish, simply click the Espanol button in the top right corner of any page on the website.
USA Today recently published an article looking at the growing and troubling trend of people who are (or are suspecting to be) faking a disability in order to get preferred status during travel, especially in regard to airlines. From wanting to board first, to making very questionable claims asserting an accompanying pet is a “service animal,” people are apparently gaming the system to make airline travel easier.
Among the most egregious violators are those passengers who board first, in wheelchairs, and then when the flight is over, walk off the plane and down to baggage claim without any need of assistance. Airline personnel derisively refer to these types of passengers as recipients of miracle healing, as if they had been given divine intervention at 25,000 feet. Other instances are of passengers claiming a pet as a service animal in order to (a) have them with them on the flight and (b) avoiding paying the extra fees for travelling with a pet.
Airline crew members have a name for that kind of fake disability on a plane. It’s called a “miracle” flight.
It’s a unique corner of life because being a person with a disability is generally NOT a status people are clamoring to be a part of. People with disabilities have a harder time moving through the world. People with disabilities, as a general rule, have very low employment rates and are more likely to live in a lower socioeconomic status. There are few areas of life where there are substantive privileges associated with being a person with a disability.
One of those areas, of course, is in the area of long-term disability, especially in the case of accident litigation. Insurance companies and employers have long suspected injured parties involved in legal cases to be faking, exaggerating, or malingering their symptoms. Certainly, there are some people who do not meet the definition of permanent disability who are applying for SSDI, SSI and workers’ compensation benefits. I suspect there is no end to unscrupulous people who will try to game the system, as evidenced by the thousands of people currently fraudulently filing for unemployment during the pandemic.
There are areas of life where it is perfectly acceptable to utilize services or areas that are are also accessible to people with disabilities. That is the entire point of the concept of Universal Design in architechture. I attended Miami (Ohio) University in the late 1980s, and it was, for the most part, a highly inaccessible place for people with wheelchairs at that time. King Library – a 3-story building – had an elevator with a big wheelchair placard on it. Just because the elevator is the sole way a wheelchair user could reach the 3rd floor is not a reason for an ambulatory person to skip the elevator. The elevator is for everyone, including people with disabilities.
If you do not have a disability and you enter a public restroom that is empty, you should generally not use the accessible stalls, leaving them open in case a person with a disability’s arrival is imminent. If it is the only unoccupied stall, however, it is perfectly acceptable to use it. There is no constitutional right for a person with a disability to not have to wait for an elevator or an accessible bathroom stall, only that those options are available in the environment.
But to fake a disability to get a preferable seat on a flight, to avoid a pet fee, and to secure a prime parking spot is contemptible. These are rights of people with actual disabilities which were long fought for and their arrival signaled a tremendous step forward in our society. They are things that represent small steps toward equality. They don’t make life easy for people with disabilities, but they do make life a little less difficult. To fake a disability to do the same thing for yourself is very sad indeed.
When I was growing up in Carbondale, some of my fondest memories were going to college basketball games. The Salukis of Southern Illinois University have quite a tradition, and there were many memorable nights spent at the SIU Arena. One such evening was January 19, 1978, when SIU hosted undefeated and 4th ranked Indiana State, featuring furture NBA Hall of Famer Larry Bird. The Salukis took down the Sycamores, that evening, 79-76, one of the greatest upsets in the history of SIU basketball. The following year, the Bird and Indiana State came to town, again undefeated, ranked #1, and this time escaped with a 69-68 win, on their way to their historic season where they finished runner-up in the NCAA Tournament.
But my all-time favorite SIU team was the team from 1976-77. The team featured brothers Corky and Wayne “Rubberband Man” Abrams, Richard Ford, and Gary Wilson. The unquestioned star of the team, however, was a smooth shooting guard by the name of Mike Glenn, known as “The Stinger.” Glenn averaged 21 points per game and the Salukis went 22-7 in a season which featured a win over nationally ranked Mizzou, MVC regular-season and tournament titles, and a berth in the NCAA tournament. There were only 32 teams in the tournament back then, so the first-round victory over Arizona put the Salukis in the Sweet 16 for the very first time. They would go on to lose their next game to #9 Wake Forest out of the ACC, putting an end to one of the great Saluki seasons of all time.
Mike Glenn went to Coosa High School in Rome, Georgia. If you wonder how a kid from northwest Georgia winds up in Carbondale, it was because in the early 1970s, many colleges in the south would not recruit black athletes. SIU had an assistant coach, Herm Williamson, who had developed contacts in Georgia high schools, and many talented black players had made their way to SIU in those days. Prior to Glenn, Walt Frazier had come up from Atlanta and future NBA player Joe Meriweather had arrived a few years later from Columbus, GA. Once desegration finally took hold and SEC schools started recruting black players, the pipeline dried up and a golden era of Saluki basketball came to an end.
Mike Glenn’s father was a high school basketball coach – but not of just any high school. Charles Glenn was the head basketball coach at the Geogia School for the Deaf in nearby Cave Spring. Young Mike spent his childhood going to practices, learning the game, and learning to be around deaf athletes and deaf culture. After his stellar career at SIU, Mike Glenn was selected in the second round of the NBA draft by the Chicago Bulls and played 10 seasons in the NBA with the Buffalo Braves, the New York Knicks, the Atlanta Hawks and the Milwaukee Bucks.
My guess is he was probably the only NBA player fluent in sign language, and Mike Glenn never forgot about the kids back in Cave Spring. Starting in 1979, he established the Mike Glenn Basketball Camp for the Deaf, the first such basketball camp in the country and it still exists to this day. Currently held in Decatur, Georgia, the camp is free to all deaf basketball players and has featured current and former NBA players as well as well as appearences by the Harlem Globetrotters. It helped give momentum to other deaf basketball camps all across the country.
After his playing career, Mike Glenn would go on to be a basketball announcer and color analyst for TNT, ESPN, and the Atlanta Hawks television network. In 2016, he was inducted in the Georgia Sports Hall of Fame. SIU has always been proud of Mike Glenn, class of 1977, and not just because of his career in the NBA. They are more proud of the person he is, how he always gives back to the deaf community, and how he is a wonderful representive for the university.